My story of bone marrow transplantation


posted on 20th of july, 2012

Hello all! My name is Brian. I just wanted to let everyone know how they can save people's lives. About a year ago my health began to deteriorate, and by December I found out that I had a very rare bone marrow disorder called aplastic anemia. This is a disease where my immune system attacked my bone marrow and destroyed it leaving me with no way to make enough blood to sustain myself (blood consists of white blood cells for immunity, red blood cells to carry oxygen, and platelets to help clot). I became transfusion dependent in December and have been receiving both red blood and platelets since.


But here is the amazing part, after several treatments failing we moved to a Bone Marrow Transplant. This means that I had to have what was left of my immune system and bone marrow destroyed by chemotherapy and radiation and new stem cells infused into me. The problem is that I did not have a sibling match. Someone literally saved my life by donating bone marrow to me.
For legal reasons I will not be able to know who this person is for one year. I spent a month in the half in the hospital in June and July and am now recovering at home. It's still early on, but I have not had a transfusion in almost three weeks! My body is working and hopefully soon I can get back outside to take pictures.
I wanted to write this because I am so grateful, and you can be a life saver too. Visit marrow.org and request to get on the list. Most forms of donation are nearly painless, and most are never called up to donate (I spent four years on the list without ever being called). Also, support your blood bank with donations of platelets or blood. I alone consumed nearly 80 units of blood to keep me alive until the transplant.
Thank you community for giving this more than a passing thought. If you have any questions I am more than happy to answer as I recover on my couch.


Comments (19)

Posted by Mscates176 on July 24, 2012
I wish you well, and hope u get better. 2 years ago i was diagnosed with testicular cancer so i know what you mean about health.
Mark
Posted by Zenonk on July 24, 2012
thanks for sharing
Posted by Sdeva on July 24, 2012
Thank you for sharing - and wishing you a speedy recovery and good health.
Posted by Mike2focus on July 24, 2012
Thanks for posting this inspirational article, Brian. If this article can convince just a few people to donate blood, you may have literally saved some lives by writing this! God bless you in your recovery and happy future shooting!! Mike
Posted by Calyx22 on July 23, 2012
Oh my! That is wonderful that you found a matching donor and that you are doing well. And also that you are taking the time to promote an organization, that for so many reasons, means so much to you. Best wishes to you for your continued recovery and health. I hope you are back outside taking pictures in no time. xx
Posted by Bjlongmore on July 23, 2012
If anyone wants any other information on my story it can be found at http://bjlongmore.tumblr.com/
Thanks again for the kind words!
Posted by Suebmtl on July 23, 2012
Best of luck.I wish you a speedy recovery with a very healthy immune system.
Posted by Laurasinelle on July 23, 2012
Thanks for sharing your story, I hope you recovery!
Posted by Egomezta on July 23, 2012
Best wishes for you...
Posted by Bjlongmore on July 22, 2012
Thank you everybody for your kind words, I know that the news would quickly portray things as so messy. But I really do want people to know that a complete stranger (actually many) saved my life and how grateful I am for that.
Posted by Henrymm on July 22, 2012
Very glad to hear that you are getting better and wish you have a quick recovery. Take care..
Posted by Dmccale on July 21, 2012
that is great news,I wish you a fast recovery PEACE Debbie
Posted by Banol2007 on July 21, 2012
I wish you get well soon! Thanks & all the best for donors!!! Take your camera & tell to people about value of life because now yours looking & feeling is different, it is deeper!
Posted by Hanbaoluan on July 21, 2012
I wish you a speedy recovery.
Posted by Chanevy on July 20, 2012
Thank you for sharing this. I pray for your fast recovery.
Posted by Arim44 on July 20, 2012
I wish you a fast recovery and good luck!
Posted by Martingraf on July 20, 2012
many thanks for sharing this - I wish you that you can take those pictures even sooner than you can now imagine.
Posted by Kikkerdirk on July 20, 2012
Nice post! Wish you all the best!
Posted by Digitalreflections on July 20, 2012
best wishes.



Comments (19)

This article has been read 889 times. 3 readers have found this article useful.
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San Diego, US

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